Channel 4, Time to Change and the Mental Health Hierarchy

21 05 2013

A few months ago, Channel 4 made the decision to broadcast a reality series in which ‘compulsive cleaner Linda Dykes leads a team of like-minded people to help clean Britain’s dirty homes and filthy public spaces’.

I wasn’t surprised by the furore that the programme caused within the ‘OCD community’ – the term OCD was being used to describe people who claimed to enjoy their cleaning (I’m yet to hear of someone who enjoys their OCD)

OCD-UK, a charity that I have been involved with for many years and who I have a lot of respect for, contacted Channel 4 along with Paul Salkovskis who is one of the most respected clinicians and researchers working within the field anxiety disorders in the UK.

They also contacted Time to Change, the campaigning group that aims to “end mental health discrimination” and who developed the pledge or ‘bindin promise’ aiming to end stigma that Channel 4 had happily signed.

What followed was pretty unbelievable, and you can read the full story and what Paul Salkovskis had to say about it here.

However, what really worried me was the notion that there is a hierarchy of mental health problems. What would Time to Change have done if the programme had featured people with schizophrenia or bipolar disorder? I’m not sure that they would have had the same reaction.

You see, the sad truth is that OCD is still the poor cousin when it comes to mental illness. It’s still seen as funny (and you can see my endless posts on  that particular bee in my bonnet here and here), it’s still seen as a quirk rather than a serious mental illness.

I have said it again and again – people lose their jobs, their marriages, their homes and their lives to OCD. People kill themselves because they cannot cope with the anxiety and the worry that comes with this illness.

But we didn’t see that in the programme, did we?

Obsessively compulsively yours,

Bellsie





Here We Go

20 05 2013

Tonight I’m waiting for my life to start and worrying that it never will. That’s okay, right?

You’ve gotta hope that there’s someone for you
As strange as you are
Who can cope with the things that you do
Without trying too hard

Because you can bend the truth
Until it’s soothing you
These things that you’re wrapping all around you
You never know what they will amount to
And your life is just going on without you
It’s the end of the things you know
Here we go

You’ve gotta know that there’s more to this world
Than what you have seen
Because we all have a limited view of what we can be

As we move along
With our blinders on
Each one of us feels a little stranded
And you can’t explain or understand it
Each one of us on a different planet
And admist all the to and fro
Someone can say “Hello, 
Here we go”

The feeling that someone really gets you
It’s something that no one should object to
It could happen today so I suggest you
Skip your habit of laying low
It’s the end of the things you know
Here we go

Because someone can say “Hello,
You old so and so, here we go”

- Jon Brion, Here We Go





Not Quite There

9 05 2013

In what was probably an inevitable turn of events following my recent post, I’m having a bit of  a blip. Not a huge one, and nothing that Iwon’t get over, but a blip none the less. Anyway, I’m struggling a bit with a few issues, but one came to abit of a head this evening.

Last week I did a pretty huge exposure – although it hardly sounds it – and managed to delete some of the pictures on my iPod. I had been happily snapping away for months and months and came to the realisation that my inability to delete pictures meant that I had nearly 1000 of them on there, clambering over one another and fighting for space. I was routinely deleting music to make space for more, and I decided that something had to be done about it.

For me, the worry is always that the process of deleting a picture of somebody could cause them harm, an idea that seems as ridiculous to me as it does to you. I know deep down that there is no way that my iPod is somehow connected to the cosmos and that the second I delete a photograph of somebody, a lightening bolt will zap down from on high and finish them off, but in the moment, the slimmest, tiniest chance that it could be true trumps all logic.

One night last week, I decided to bite the bullet. I did it – I deleted about 60 photographs (mostly of my youngest brother’s self portraits – him gurning at the camera still provokes hilarity in his mind). And then this evening, I restored my iPod, believing to have backed it up today. I hadn’t. So the photos are all back on there and I have to do it all over again.

And now there’s a stupid voice in my head telling me that this is a second chance, that I’ve got the pictures back so everything will be okay. That my stupidity in restoring to an older version means that everyone has been somehow “saved” from the Great iPod Photo Cull of 2013. Not helpful, brain.

So now I’m sitting here, typing this and trying to get up the courage to do it all over again. One part of me feels angry – I really, really didn’t need this today. I’m having a tough week anyway and I don’t need another bloody challenge. And another part of me feels that this is a chance for me to show the OCD who is boss, to face a very scary but eminently do-able exposure and come out on top.

And another part of me just wants a glass of wine.

Obsessively compulsively yours,

Bellsie





Let’s Talk – Friends

29 04 2013

In the first part of this series (written months ago because I’ve been incredibly neglectful of this blog), I wrote about talking to my parents about my OCD. This time I’ll be focussing on talking about mental health with my friends.

During my last year at school, when I first obtained full fruitcake status, I think that the entire class was aware of my OCD, some of them before even I was. I had a lot of rituals to do with my work and would often spend an hour writing and re-writing a sentence until it was perfect or just manage to get my desk looking ‘right’ by the time the lesson finished. I also avoided stepping on the cracks between the tiles in the science lab and would (to everyone’s amusement, including my then teachers) walk around on tiptoes, beakers of I dread to think sloshing around in my hands as my eyes were fixated on the floor.

I think that whilst everyone knew I had these different “quirks”, they didn’t realise how serious it had got. They also probably didn’t make the link between all these strange behaviours and the fact that I was becoming increasingly anxious about even attending school and was starting to skip lessons.

As it was, when I left school and went to university my OCD became a lot worse and I pushed all my school friends away. Even now I am no longer really in contact with any of them, something that I’m not proud of. I think that a lot of it has to do with shame – I was always top of the class and everyone assumed that I would do well, and yet there I was, a drop-out, a failure.

During my time off university I was very isolated. I kept in touch with very few people and depended entirely upon my family. I wasn’t up to keeping in touch with people and I justified it to myself by the fact that if I were to get too close to someone, they would just get wrapped up in my obsessions and soon I would have another person to ‘take care of’ with my rituals.

Last year I wrote about the friends I had made at university, on my Psychology degree course. The wonderful thing is that they are still my friends – they haven’t worked me out yet!

When I was home from Munich and Newcastle last month I went to see them for a day – the four of us ate lunch together and laughed for about two hours straight. It was lovely – I felt as though I had never been away and it filled another crack in my self esteem. I’m looking forward to going back in September.

I talked to them about my OCD quite early on in our friendship. I suppose I naïvely assumed that they would understand, being Psychology students. I was lucky in that they did and it became a natural conversation point between us – they joked about it in a way that I felt they were laughing at the OCD and not me. Whilst in Munich, I got a text from one of them saying that it was a good job that I wasn’t there as I’d been assigned place number 666 for my exams…

I don’t hide my OCD – in fact on Facebook I’m relatively open about it. I’ve never posted a link to this blog but I have put the blogs that I’ve written for Mind on there. And in the last few months something strange has happened. Three different friends have contacted me out of the blue to ask about OCD. I hadn’t ever spoken about the topic with any of them directly but they had inferred from my posts that I knew something about it and that I wasn’t afraid to talk about it. In all three cases (two family members and one sufferer) I was able to point them in the right direction and it’s totally convinced me of the importance of being open. On Facebook I can control who sees things and it’s a perfect arena to experiment with disclosure.

And finally, there are my special friends. Different people from different places who have always been there, no matter how distant I become or how much of a pain in the arse I’m being.

There are very old school friends – most of whom I’ve only ever spoken about OCD with briefly and who remember me as the person I was before OCD and love me as the person I am after, glossing over the middle.

There’s J, who I have known for half my life (since the first year of secondary school) and who has been a constant calm presence throughout and with whom I have never spoken about my OCD in detail but feel that I don’t have to. Our friendship is based on something different – not the day to day stuff but the tugging bond of shared history.

There’s S, one of a very small number of people that I honestly feel I could tell anything to. There probably isn’t another person outside of my family (and Ruth) who has been more supportive throughout my OCD. She is always there for me – whether it’s to tell me to have a glass of wine and go to bed, to listen to my fears and tell me that everything is going to be okay or to make me laugh until I forget why I’m scared. The knowledge that there is someone that I can turn to whenever has been incredibly important to me and I will never be able to thank her enough. I always think that S (and her lovely family) has seen me at my very best and at my very worst and loved me just the same.

It hasn’t all been good experiences – there are friends that I have told about my OCD only to have them distance themselves, but they have been few and far between. The vast majority of my experiences of talking about mental health have been positive. Perhaps I’ve been lucky or perhaps I underestimate others’ understanding.

Gosh, what a waffling post… I think it’s time for bed!

Obsessively compulsively yours,

Bellsie





Munich in the Sun

27 04 2013

It feels as though Summer has arrived here in Munich.

I’m just pretending that I haven’t seen that it’s going to rain all next week.

2013-04-13 12.35.51

 
2013-04-13 11.20.15

 





Life

26 04 2013

It’s been a long time since I last blogged. I don’t have a valid excuse, and yet the one that I do have is so fantastically wonderful that I could shout it from the rooftops.

Life got in the way.

I know, it probably sounds stupid, but it’s true. Life got in the way of OCD and not the other way around.

In February and March I spent six amazing weeks in Newcastle. And I think that it’s fair to say that they changed my life. It wasn’t just the fact that I loved my placements, or that they appreciated my work, or that I was away from everything I knew and yet coping, or that I made new friends when I’ve always had the social skills of a damp flannel.

It’s that for the first time in years, I am so much more than the OCD. When I went to Newcastle, the OCD wasn’t at its best. I was slightly dreading my placements, not looking forward to living with a family who weren’t used to my odd behaviour. I had, during my exams, grown complacent with fighting the OCD and it was more in control than I would have liked. The small, seemingly innocent rituals were creeping back in. And the problem with the small rituals is that they add up.

Things happened. I met amazing people who are passionate about their work. I felt that there was a place for me, that I could, one day, make a difference. I spent a lot of time with three children who mean a lot to me (and one of them would make a better CBT therapist than many that I have met – she had no time for my OCD’s demands and would either question what I was doing and make me see how ridiculous it is or just ignore it, carrying on as she wished, going against what the antsy, itching OCD part of my brain was screaming at me. And she’s nine.).

People liked me because I’m me. Not despite of it.

And more things have happened since. Things that make me feel that the world truly is my oyster. That things are beginning.

A few years ago I thought my life was over. In reality, it’s just starting.

Obsessively compulsively yours,

Bellsie

 





My Mind Blog

5 02 2013

My Mind Blog

I sort of forgot to ever post this – an article I wrote for Mind’s blog last month.








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